Background Information from
Patrizia
Ceccarani of the Lega del Filo d’Oro
In 1964 a small group of volunteers together with a
group of deafblind people, headed by the remarkable deafblind woman,
Sabina Santilli, met during the summer holidays to discuss the state
of affairs of deafblind people living in Italy. It was decided as a
result that services should be developed to improve the situation of
deafblind children and adults, and a plan of action was drawn up.
To create services, official recognition by the
Government was needed and an association was founded.
The name Lega del Filo d'Oro (the League of the
Golden Thread) was proposed and accepted.
Until 1967 the major aim of the newly founded
Association was to obtain formal recognition from the Ministry,
while continuing its annual summer meetings. In this important year
for the Lega, this commitment was finally rewarded by a Presidential
Decree from the Government.
The aims of the Association were, and still are,
assistance, rehabilitation, and, whenever possible, social
integration of deafblind and multihandicapped individuals in their
natural, family environment.
This Decree allowed the “Lega” to create one of its
principal activities, namely the Institute “Nostra Casa” (“Our
Home”) where, in limited accommodation, a group of 4 deafblind
children received their education from a small group of dedicated
professionals and volunteers.
The ever-growing activities of the Institute, the
gathering of experience and knowledge and the creation of services
were officially acknowledged by the Ministry of Health in 1974,
which recognised the "Lega" as a Rehabilitation Centre (medical,
social and educational services). In 1976 the Ministry of Education
recognised it as an Experimental School and Research Centre (a
school with all the necessary services for specialising in sensory
handicaps). In the years from 1976 to date the Rehabilitation
Centre, set in green countryside on top of the Marche hills, on the
outskirts of the town of Osimo (AN), which is the only one of its
kind in Italy, has grown considerably, providing today a specialized
educational setting for 71 people (baby, preschool and school
children, adolescents and adults).
There are now 248 staff employed in the Lega. The
Rehabilitation Centre offers various services: a Diagnostic and Documentation Centre,
rehabilitation sectors, a research centre and health services.

The Rehabilitation Centre team offers services of
various types: psychological, educational, social, medical,
rehabilitative (with educational-rehabilitation workers,
rehabilitation therapists, music therapy and speech therapists) and
organisational.
In the Rehabilitation Centre, clients are taught how
to understand learning basics, the various types of communication,
how to achieve personal autonomy, to play, to work and to have a
life of dignity.
At the Diagnostic Centre, which was created in 1994,
thorough educational, psychological and medical evaluations are
carried out even on deafblind and/or multisensory impaired children
under the age of three (early intervention).

After a multidisciplinary/interdisciplinary
evaluation, the specialists work together to produce a functional
programme which includes a plan of the treatment to be carried out
either at another institute in the user’s home area or in the
rehabilitation sector of the Lega del Filo d’Oro.
The aim of
rehabilitation is to enable the multi-sensory impaired person to
return to their natural environment, that means in many cases to
their families. We try to encourage a uniform approach to the
teaching so that improvements achieved are maintained and so that
all the skills acquired can be used in the family environment.
It is also important to remember that in order for
the client to transfer the learning, the family must know what to do
when confronted with the various behaviours of their child. This
means that parents must be informed and thus able to take an active
part in the rehabilitation process.
Our approach with them is multi-dimensional and based
on personal interviews, telephone conversations, written
communications, direct observation of the teaching procedures and
parent courses.
We therefore try to involve both parents as it is
very important to us that the same style of teaching should be
maintained for the client’s benefit.

We pay attention to trying to stimulate positive
attitudes in the parents towards their children and each other and
to developing their parenting skills and we offer support to the
couple from the institute to encourage maximum co-operation between
us.
The Research Centre is another important element of
the activities of the Association. It is coordinated by a Scientific
Committee and at present the subjects being investigated are in
medical, psycho-educational, rehabilitation and
social-organizational areas. The research is carried out in
cooperation with national and international Centres, Universities,
Colleges, etc.
The Association, since its creation, has set out to
promote services for deafblind people who are not actually living
within the structure of the Institute itself. The activities include
finding recreational, cultural and professional opportunities, for
children as well as adults.
The services take the form of summer vacations,
training course, visits, exchanges, etc.
The Association publishes a newsletter in Braille, a
two monthly information bulletin for members and supporters, and
several publications aimed at the general public and specialists, as
part of its awareness programme. The Lega also publishes “Trilli
nell’Azzurro”, the official bulletin of the association which
publishes articles to raise awareness of all the activities of the
association. All media, including radio and television, are also
regularly used to promote public awareness of the situation of
deafblind children and adults.
In 1991 the Lega del Filo d'Oro created “the Italian
Deafblind Committee” which allows deafblind people to participate in
the Association's activities. There is also a “Family Committee”
with nine members, which makes proposals and offers consultation to
the Administration Council of the Lega del Filo d’Oro. It plays an
active role in the various initiatives while always placing the
needs of the clients first.
The "Lega" has
contacted approximately 1300 deafblind or multihandicapped people
since its creation, and the services have developed to give a more
adequate response. As the "Lega" becomes better known and the demand
consequently increases, we now have to define the future and
evaluate the past. In order to respond to an ever-increasing demand,
the Association is currently evaluating the possibility of
transferring its experience and model to other parts of the country.

The regional office in Milan has created an adult
home community which offers hospitality to 5 deafblind people.
Two years ago work started on the ComeTe Centre (Modena)
to extend the activities begun in the Osimo Institute to the whole
of Northern Italy, and the new Lesmo Centre (Milan) will open in a
few months.
Regional offices have been opened in Rome, Naples, Ruvo di Puglia (BA) and Osimo with support activities.
The Lega del Filo d’Oro, in conjunction with the
European Community has taken part in the: Horizon Projects “Towards
employment for deafblind and multisensory impaired people”
(1996-1998) and “New Opportunities in working life for deafblind
people” (1997-1999); CAUSE -Network Usher – Charge (2001 – 2003)
“GENDEAF” is working on genetic projects on sensory impairments such
as deafblindness (2002-2004).
The Government supplies only part of the funding.
Most of the activities of diagnosis, assistance, rehabilitation and
implementation of new projects are made possible by the goodwill of
private individuals. Over 300 thousand of them are donors who year
after year show their solidarity with the Lega del Filo d'Oro.
For further information: see the Lega del Filo
d’Oro’s website
www.legadelfilodoro.it
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